"Hope" this update finds you well, blessed,
and well blessed. We apologize for taking so long to update you on what
has been going on. We apologize for not updating the pictures as well.
We will get some new pictures up very soon. We have lots to share!
Many of you have been concerned and asking for
updates and pictures. Erin Hope has been feeling well but has been
dealing with what we determine as some muscle spasms/tension in one of her
shoulders and her neck. She has been taking anti-inflammatorys, heat
wraps and a non-sedating muscle relaxer. which seem to help.
We have decided to pursue getting Erin Hope enrolled
in one of the clinical trials in Bethesda Maryland. This is the site of
the National Cancer Institute at the National Institute of Health. There
is a very promising trial that contains the chemotherapy drug that
caused the best tumor response in Erin Hope. We are awaiting to talk
personally with the doctor up there. We have exchanged emails but
need to talk to obtain additional information.
Erin Hope is enjoying her summer. The entire
family was able to go to Myrtle Beach, SC for a whole week thanks to
the generosity of Jason's House, a ministry of the Surfside United Methodist
Church in Surfside Beach, SC. This twenty year old ministry invites
children with life-threatening cancer to spend an entire week at the beach virtually
free! They solicit local motels, parks, and restaurants to donate
to these families and Erin Hope was chosen. We had a blast and had
more things to do than we could physically complete. Many thanks
to: Tropical Seas Hotel, Hard Rock Café, Wild Water Park, Ripley's
Believe It Or Not, Family Kingdom Amusement Park, Myrtle Beach Pavilion,
Burger King, Arby's, Gran Prix Amusement Park, Krispy Kreme Doughnuts, Nascar
Amusement Park, Carolina Opry, Legends Entertainment Show, Angelo's Steak and
Pasta, Domino's Pizza, Wendy's, Papa John's, Ben & Jerrys' Ice Cream,
J.D.'s Pig and Chicken, Benjamin's Bagels, Golden Corral, Buccaneer Bay
Mini Golf, Great American River Boat Ride, Harbor Lights Golf, Myrtle Beach
Pelican Baseball, Ocean Water Sports, Safari Golf, and the Pantry Stores for
supplying gas while we were there. Special thanks also to all of
the fine folks at Surfside United Methodist Church. God bless you all!
Please keep praying for Erin Hope and believing
in prayer that God will heal her body and that she will grow up and
declare the works of the Lord. We thank God for you and pray
for God's many blessings upon your life. Please know that God loves
you and wants the best for you. If you haven't yet, please ask the Lord
Jesus Christ into your heart to be Lord of your life so you too, can be
with him in heaven someday. That’s the only way to get to heaven.
Stay tuned for pictures very soon. I promise! No,
really, I mean it.
God is good...ALL the time!!!